Sickle Cell Disease African Scientific Symposium 2026

Theme

Accelerating Drug Development for Sickle Cell Disease in Africa

  • đź“Ť Marriott Hotel, Ikeja
  • đź“… July 30–31, 2026
  • ⏰ 8:00 AM – 5:00 PM
Register Now
SCD Scientific Symposium
30th
July
31st
July
Event starts in: -- days --:--:--
Google Calendar iCal / Outlook

Registration Form

Spaces are limited to ensure a high-value, interactive experience. Register to 
reserve your complimentary spot.

SCD Scientific Symposium

Personal Information

Summary
Regulatory requirements for long-term data collection following gene therapy are well known, however many are still seeking pragmatic solutions to address this significant need. Solutions must decide how to address the bridge from clinical trial to post approval exposures. Adoption of real-world methods and real-world data can ease this data collection burden. In this webinar, experts will review some of the ways real world data and methods can support this surveillance requirement, focusing on pragmatic solutions and adaptive operational approaches.
Webinar attendees will:
  • Review regulatory requirements and challenges for long-term follow-up
  • Hear a discussion on current pragmatic approaches in the trial population and real world data sources in the post-approval process
  • Explore future ideas for long-term follow-up including tokenization, EMR to EDC, and others
Speakers:
Image Placeholder
Barbara Arone
Vice President, Medical Affairs Category Lead Real World Evidence, IQVIA
Image Placeholder
Barbara Arone
Vice President, Medical Affairs Category Lead Real World Evidence, IQVIA